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CURE PARALYSIS NOW  The Original Web Site for the Advancement of the Cure for Spinal Cord Paralysis
We would like to thank the American Paralysis Association for their support of Cure Paralysis Now.
RELATED CHAT FORUMS, DISCUSSION LISTS, ON-LINE SUPPORT, ETC.

StemCellRESEARCHNews
 
The original newsgroup for discussions on spinal cord paralysis, research and cure. 

alt.med.cure-paralysis

Chat Forums and  Message Boards
Disability Chat Links
Equal Access Cafe Chatroom
SCI Info Discussion Forum
Project Enable Bulletin Board
Spinal Research Web Board (U.K.)

Ability Forum's Meeting Place

Spinal Cord Injury Web Forums at MASS General Hospital

Spinal cord injury chat room

SCI and Cure Research:
 Articles and Publications Online

Disability Renegade 
 by Nikos Voulgaropoulos
ABILITIES is Canada's foremost cross-disability lifestyle magazine.  The site also features an SCI message board and chat room.

Pushin' On Newsletter
The Miami Project to Cure Paralysis
Disability Resources Monthly
Connections
Kessler Institute for Rehabilitation, Inc.
 West Orange, New Jersey 
Newsletter that shares information on the services available at Kessler, as well as highlighting developments in SCI research.
List of scientific papers on aging with spinal cord injury.

This U.K. charitable organization has a great list of links to online articles and newsletters

Discussion Groups

This list is for people who have suffered a spinal cord injury as the result of an injury or illness. A good opportunity to meet people who know what it's like to walk in our shoes . Coping with our disabilities and the complications that go along post spinal cord injury need to be talked about so we don't feel so alone.

Women with spinal cord injury make up such a small percentage of the SCI commutity that much of the information and help is aimed at men. Being a woman with SCI, I have gone in search of support and information with few results. While men have been extrodinarily helpful, their needs are far different than the needs of women. Here is a club for women with SCI so that we may offer helpful hints, moral support, and funny stories that we all need from time to time.

This is a place for discussion, support, and learning about Spinal Cord Injury... It's a club for those whos lives have been affected by spinal injury whether they were injured or know someone who was injured.
Spinal Cord Injury Pain Research (BOSTON)

DO YOU HAVE PAIN FROM SPINAL CORD INJURY? The Massachusetts General Hospital is seeking volunteers for a research project to evaluate an investigational drug as a treatment for specific types of pain caused by spinal cord injury (SCI). Males and females, between the ages of 18 and 85 with SCI who have persistent pain for a minimum of 3 months may be eligible.

The goal of this group is to provide a place for those of us whose lives are touched by spinal cord injury to share our experiances. There are other good egroups that focus on research, advocy, and caregivers. This group is more for friendship..for sci individual and partners or loved ones.
Geoffrey Lance Foundation Mailing List
Disabled Disability and Psychology Discussion Group (123 subscribers)

DISABLED-UNDER-25 (13 subscribers)
Travel for the Disabled (427 subscribers)
SCI Mailing List: There is an Internet mailing list on the topic of spinal cord injury, called SCIPIN-L List. To join it, send a message to with only the words "subscribe SCIPIN-L" in the body of the message. (After you join, send all messages to the list to , NOT to the address above.)
MOBILITY SJU Mobility Disablities List. To join, send a message to with only the words "subscribe MOBILITY" in the body of the message. (After you join, send all messages to the list to , NOT to the address above.)

Research Review Newsletter is the SCI  research newsletter of the University of Alabama.  A fairly recent on-line article features 22 links to sites currently conducting cure research procedures:  

Research for the Cure in Spinal Cord Injury
 Volume 4, Issue 1, February, 2002Michael Craig, MD and Amie B Jackson, MD

On-Line SCI Communities and Support
Spinal Cord Injury Help Site The effort of a lawyer and a paraplegic to offer medical and legal support and information, including a forum for regularly scheduled chat discussions. 

SPINAL CORD INJURY HELPLINE™

Since its inception in 1988, The Alan T Brown Foundation (ATBF) has targeted a single goal—finding a cure for spinal paralysis. The Foundation supports an impressive group of renowned national and international researchers to identify a cure for spinal cord injuries, while serving as a vital resource and support system for the newly injured and their families.

Comments:  This is an excellent site, demonstrating a lot of enthusiasm and tenacity in the pursuit of CURE, with a motto that reads "TO STAND UP AND WALK AGAIN"

 

SCI Community Center
SCI-FYI:  a guide to Northern California Resources for individuals with spinal cord injury.

National Spinal Cord Injury Society's site has an exceptionally comprehensive list of support resources 
Starting Your Own SCI Self-Help Group
Neurological Rehabilitation
Disability Index
Department of Neurosurgery
 Wake Forest University School of Medicine
Winston-Salem, North Carolina

Dr. P's Assistance Dogs
Independence Dogs, Inc. (IDI), a nonprofit organization founded in 1984, provides highly trained service dogs for children and adults with mobility impairments. These special dogs provide all the physical, psychological, and therapeutic support their human partners need to lead full, productive, independent lives.

Statistical Facts of Spinal Cord Injury

The following information relates to traumatic spinal cord injury. It was compiled primarily by researchers at the University of Alabama using data from the regional SCI Centers nationwide.

Number of New Injuries Per Year

  • 32 injuries per million population or
  • 7800 injuries in the US each year

Causes of Spinal Cord Injury

  • Motor vehicle accidents (44%)
  • Acts of violence (24%)
  • Falls (22%)
  • Sports (8%) (2/3 of these are from diving)
  • Other (2%)

 

Since 1988:

  • 45 percent of all injuries have been complete
  • 55 percent incomplete
Most Frequent Neurological Category By Percent:
  • Quadriplegia: complete 17.5
  • Quadriplegia: incomplete 31.2
  • Paraplegia: complete 28.2
  • Paraplegia: incomplete 23.1
  • More than 1/2 of all injuries result in quadriplegia
  • 92 percent of all sports injuries result in quadriplegia

Causes of Death

The most common cause of death is respiratory ailment, whereas, in the past, it was renal failure. An increasing number of people with SCI are dying of unrelated causes such as cancer or cardiovascular disease, similar to that of the general population. Mortality rates are significantly higher during the first year after injury than during subsequent years. We are continually finding out about people who have lived 30, 40, and even 50 years after their injuries.

NSCIA, 8/96. This Information is offered as a service and is not intended to be comprehensive. This information is adapted from a Factsheet compiled by the National Spinal Cord Injury Statistical Center at the University of Birmingham. Copyright ©1995-96 NSCIA. All rights reserved. Used by Permission. The National Spinal Cord Injury Resource Center (NSCIRC) provides information and referral on any subject related to spinal cord injury. Contact the resource center at .

 

  
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